The KCE Trials programme strongly recommends to have patients and public actively involved in the design of the study. This can include, for example, involvement in the choice of the research topic, choice of outcomes, assisting in the design, advising on the feasibility of the research etc.
Further information and resources can be found on the website of INVOLVE, a programme funded by the National Institute for Health Research (UK) to support active public involvement in NHS, public health and social care research: www.invo.org.uk.
Other useful links
- Website ‘Ligue des usagers des services de santé’: http://www.luss.be/
- Website ‘Vlaams Patientenplatform’: http://www.vlaamspatientenplatform.be/
- Website ‘Patiëntenfederatie Nederland’: https://www.patientenfederatie.nl/
- Website ‘European Patient Ambassador Programme’: https://www.epaponline.org/
- Amadea Turk, Anne-Marie Boylan, Louise Locock. ‘A Researcher’s Guide to Patient and Public Involvement’. https://oxfordbrc.nihr.ac.uk/wp-content/uploads/2017/03/A-Researchers-Guide-to-PPI.pdf